Some of the best words in the english language - "off the bypass machine!" Can't wait to hear how she's doing - I'm sure just fine! Give her a gentle kiss on the hand from us when you can!
Hi , we just found your site. She's beautiful as well as the rest of you . I have also been blessed w/ a daughter w/ vcfs and a grandson w/ DGS. I am so proud for you all that she is doing so well. We too, are trying to get info. out for families w/22q-DGS-VCFS. Please visit us @ http:elijahslegacy.blogspot.com/ Grammie
Angelina was born March 1, 2007. When she was 2 days old after almost losing her, we learned she had 3 heart defects: An Interrupted Aortic Arch, a VSD and Critical Aortic Valve Stenosis. A week and a half later it was confirmed she had Velo-Cardio-Facial Syndrome (also know as DiGeorge Syndrome and other names). At 2 weeks of age she had her first of 3 heart surgeries: Norwood Stage 1, when she was six months old she had her second: the Glenn Procedure. On December 30, 2008, she had her 3rd and hopefully her last heart sugery, the Fontan. Her recovery has been amazing! Angelina is a spunky, cheerful little girl!
Visit and Share at Mommy's Corner
Project Angel Heart was started to help us get to the Annual VCFS conference in Troy, Michigan. Day to day we have appointments either therapy or Dr.'s visits. These copays, along with all the medications and special formula add up! If you'd like to help, we would be forever grateful!
5 comments:
Hope your recovery goes as well as you are cute, Angelina! We can't wait to see pictures of your beautiful smiling face again.
Some of the best words in the english language - "off the bypass machine!" Can't wait to hear how she's doing - I'm sure just fine! Give her a gentle kiss on the hand from us when you can!
that's great! can't wait to read more!
Prayers for your little one, who has the best head of hair I have ever seen. What a beauty!!
xo-Christine (Auntie Sasa's friend)
Hi , we just found your site. She's beautiful as well as the rest of you . I have also been blessed w/ a daughter w/ vcfs and a grandson w/ DGS. I am so proud for you all that she is doing so well. We too, are trying to get info. out for families w/22q-DGS-VCFS. Please visit us @ http:elijahslegacy.blogspot.com/
Grammie
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