OMG!!! Our shortest stay after OHS was 9 days!! Coming home on O2 is no big deal, been there... done that!! Glad to hear she's doing so well. Give her hugs from us!!
What wonderful news! Don't worry about the fact that she's mad at you, that is soooo normal. After Drew's last surgery the only word he said for days was "Nooooooooo." Keeping you all in my prayers and so glad to hear that all is going well. Anne
Angelina was born March 1, 2007. When she was 2 days old after almost losing her, we learned she had 3 heart defects: An Interrupted Aortic Arch, a VSD and Critical Aortic Valve Stenosis. A week and a half later it was confirmed she had Velo-Cardio-Facial Syndrome (also know as DiGeorge Syndrome and other names). At 2 weeks of age she had her first of 3 heart surgeries: Norwood Stage 1, when she was six months old she had her second: the Glenn Procedure. On December 30, 2008, she had her 3rd and hopefully her last heart sugery, the Fontan. Her recovery has been amazing! Angelina is a spunky, cheerful little girl!
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Project Angel Heart was started to help us get to the Annual VCFS conference in Troy, Michigan. Day to day we have appointments either therapy or Dr.'s visits. These copays, along with all the medications and special formula add up! If you'd like to help, we would be forever grateful!
4 comments:
I am so glad she is doing so well! YAYYY come home baby girl!
Wow...that sure is quick. We were in ICU for 2 weeks after Arianna's OHS.
That is SO awesome! You go Angelina!!!
I'm sure she will start loving on mommy soon.
OMG!!! Our shortest stay after OHS was 9 days!! Coming home on O2 is no big deal, been there... done that!! Glad to hear she's doing so well. Give her hugs from us!!
What wonderful news! Don't worry about the fact that she's mad at you, that is soooo normal. After Drew's last surgery the only word he said for days was "Nooooooooo." Keeping you all in my prayers and so glad to hear that all is going well.
Anne
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