Thursday, May 29, 2008

Car Wash

Our first fundraiser is set for June 8th! Thanks to my brother Hector we will be having our Car Wash at The Home Depot in Rancho Cucamonga. We hope you can make it out, and get your cars washed! We will be starting at 8 a.m. until we can't wash no more! Tell your friends! Bring your neighbors!

The Home Depot
North/ west corner of Rochester & Foothill
11884 Foothill Blvd, Rancho Cucamonga, CA 91730

Wednesday, May 28, 2008

DiGeorge Syndrome

As many of you know, Angelina has been through 2 open heart surgeries. What some of you may not know is that she has DiGeorge Syndrome, also known as Velo-cardio-facial syndrome (VCFS). VCFS has had as many as 180 anomalies reported. Common possible characteristics of this syndrome include heart problems, immunity problems, feeding problems, delay in achieving developmental milestones, delay in speech and language development, learning difficulties, kidney abnormalities, and psychological or psychiatric problems. These are only a few of the problems! Just this list alone is overwhelming to me.

It has taken me a year to be more comfortable researching Angelina’s syndrome. It breaks my heart every time I do! Then I look at her and realize how amazing she is! Not only has she had heart surgeries but she also has a feeding tube through her tummy that we must feed her through, she goes to physical and occupational therapy, she takes several medications and sees her doctors frequently.

Thankfully there is the VCFS Educational Foundation. It is through this foundation I have found inspiration; I have learned more about the syndrome and about how to care for our baby girl. I recently discovered this Foundation is having a conference, their 15th Annual Scientific Meeting. It is geared towards parents, clinicians and of course scientists. At the conference they will share “the latest updates in VCFS, therapies, education, and current research....there will be a chance to have lunch with the experts and one on one time with many professionals, through the individual consultations.” Can I tell you this makes me so excited?!! It’s from July Troy, Michigan. Caring for our three kids; Marcelina 6, Alex 3, and Angelina when both parents work is already a challenge in itself. Having to come up with $3000 for Angelina and us, her parents, to attend this conference is an even greater feat. Unfortunately there is no extra money in the household budget to pay for this very important trip.

In order to find a way to make the journey, we are planning several fundraisers. We will keep you posted on these and hope you can join us! If you can help us with donations, you can also do it through the DONATE link on this website. The conference is just around the corner; please help us make it there! We thank you in advance for your help!

Sunday, May 25, 2008

Happy signing!

Been working on sign language with the kids. Alex and Marcelina love it, especially when they get Angelina to use it too. All three of them are picking it up nicely. Angelina can sign "water," "milk," "mama" and her favorite "more!" Funny thing is, I don't remember teaching her this one....

Thursday, May 22, 2008

A new beginning

Wow! It's been a while, but here we are, 2 surgeries later with a little monkey who is all over the place! Thanks for visiting us on our new blog. Angelina is now 14 months old, she is a spunky and very happy little girl. I still can't help but look at her and think "Wow! You are an amazing little fighter!"

Cardiac-wise Angelina has done great. It's good to see her cardiologist smiling after her echos (heart ultrasound). While she's not walking yet, she's crawling, scooting and rolling everywhere! She's thinking about pulling herself to standing, but for now she's paused at pulling up to kneeling position. What keeps her happy and smiling right now? Her musical toys with buttons (not necessarily my favorite) and her brother and sister.

In my opinion lil Alex smothers her. He is always in her face kissing her, smiling at her and trying to get her to laugh. Whenever I call out for him to back off a little, he always replies, "But she likes it!" And sure enough she'll have a big smile on her face waiting for more!

Marcelina is mini-Mami. She is very protective of her. She tells me how to take care of her! "Mommy you have to wipe her nose very gently, just barely dab it," she tells me! When she comes home from school, its always, "How is Angelina today?"

We have 1 more surgery to go, sometime between when she's 18 to 24 months old. For now we are just getting stronger and bigger!