Well we have not used her g-tube for feedings in over a week. She is completely eating by mouth! Yeay!
How spoiled: we all slept through the night! She would sleep 12 hours straight, because of her continous night feedings. Now she's up by 7 hollering because she wants to eat! She wants to eat EVERYTHING, can't eat anything around her you're not going to give her because she's coming after it!
Oh yes, she feeds herself...and the floor, the wall, my clothes...how could I have forgotten the messes that come with this? ;)
2. When will she climb and stand? 
Started doing it a few weeks ago. Well not standing by herself, but pulling up to standing...On everything! She's even tried climbing out of the shopping cart twice (well the first was more like almost falling out cuz bad mommy didn't strap her in) but the second time definitely climbing out with straps on!
How spoiled: everything wasn't within her reach. Kids can't safely put their small toys up on the couch anymore. Didn't need a gate on the stairs. She wants to climb up all the time. I figure this is good, we've been working on this for a while in therapy. But there's a reason Mommy sends brother or sister to get forgotten things from upstairs MOMMY DOESN'T LIKE TO CLIMB UP AND DOWN THE STAIRS ;)
3. When will she walk?
Soon hopefully, for now she loves to practice.
Soon hopefully, for now she loves to practice.
How spoiled? We would sit her down on the floor and she would be content crawling everywhere. Now, you go to put her down: she straightens out her legs, and won't let go of your hands so you can walk her everywhere. Is that why my back has been hurting?
Am I complaining you ask? NO WAY! I love having 3 little monsters running around! Plus its my hubby's job to spoil me!
I am thrilled Angelina has stopped spoiling us! Keep it up baby girl!
7 comments:
Isn't 'normal' wonderful?!?! We've had to tube Vaeh a couple of feeds here or there, especially since the fever & rash/ eyes. So I guess we're back to Vaeh's time! I've just gotten ahead of her schedule!
We're having to 'baby-proof' the house, too, as Miss V is becoming quite moble & is very close to walking!
Not having things normal for so long makes these average moments sooo much sweeter! Enjoy!!
Yeah!!! With Micayla we were like ---"bring it on!!!" because we were so happy she could do things!!!
Oh...I'm SO JEALOUS...please bring her here to show Isaac how to do those things...just one..eating, standing, crawling...
I can't believe how much she's doing...you have to be so amazed, excited...and down right POOPED!
Are you ready for a mobile (almost) two year old!!!???
She's such a cutie pie...
(oh..and I sent your box out today...please send me pics!)
Kathy
I would love to talk to you about the next conference. How did you find out about the conference, how much the total trip costs, do you think it was worth the price, and anything else you learned. Harrison is turning 3 in less than 3 months and has absolutely zero words. He has about 8 to 10 signs and that is it. Did you learn anything about play behavior with DiGeorge? Harrison doesn't play he throws his toys. His behavioral therapist with ECI wants to send him to a Pediatric Developmental Doctor. Please let me know. My email is tiffany.hartgraves@gmail.com
She is just so adorable!!!! Can I come steal her for a weekend?!?!?!
About Shawn Stockwell, he does have a website but it's private. I can see if Trista (Shawn's Mom) wouldn't mind me giving it out. I'll let you know. I'm sure she is busy so I'm not sure if she will get to me right away.
OXOXO,
Vanessa
Yes, this book is going to mostly concentrate on adults with VCFS, because I think it's important for parents like you to hear from people like us! :-) However, I might include a chapter about adults and how they've coped so far. My mom thinks that's a good idea. Perhaps it will be a complete comprehensive guide to surviving VCFS.
PS: It's great that your daughter is reaching so many goals! It may take time, but she will be able to keep up with everyone. My nickname as a kid was "Pokey Little Puppy" because I took forever with everything, including tying my shoes...
It's great that she has such support!!
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