Oh my goodness, tomorrow we will be in Troy, Michigan! I really can't believe we are going! Feelings are mixed about this new adventure: excited to be able to participate in a conference specific to Angelina's syndrome; edgy....I can handle all this information good or bad right? Nervous, haven't flown since before 9/11, which means I haven't traveled via plane with my children! Lets hope Angelina enjoys her plane trip!
Angelina had her hearing test yesterday. I'm not sure how I feel about the results. Her left ear has very little hearing loss. The audiologist said it wasn't something that she would need a hearing aide for, and that it was very minimal. In her right ear there is no hearing loss BUT there is a delay- huh? The message from the ear to the brain is slow. Ok, that doesn't sound good right? Still not sure what to make of it, it's troubling because well, what's causing the delay? And why only on one side? So now the recommendation is to see a neurologist. One more specialist to the list of her doctors!
On a good note, little Ms Angelina is eating so well by mouth! She is definitely a frijolera! (loves beans) Now that she doesn't get continuous tube feedings through the night, she is waking up early and hungry! We are so happy to see her eating so well! If she keeps it up, then we won't need a G-tube anymore!
Wish us luck on our trip, I will try to post from Michigan on how our trip is going! Oh, and comments are always welcome! Just click on comments!
Wednesday, July 16, 2008
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Micayla had less than steller hearing tests too but after talking with her dr we decided that for now we are not going to worry about it. I didn't like the way they did the test anyway. Good luck with that!!!!
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