Update on Angelina

As you may know Angelina has a feeding tube called a G-tube, which we feed her formula through. She has had it for a year, and we've been working with the help from Occupational therapy to get her to eat orally. Its been a slow long process, but I'm happy to say she eats quite well by mouth now. Why, you wonder did she not do so before? 3 reasons: 1. Cardiac babies tend not to be good eaters, 1 because it tires them out, and 2 because when they do heart surgery they come very close to a nerve related to eating. 2. DiGeorge babies are known to have eating difficulties. 3. Angelina use to have severe Reflux or GERD, and everytime she threw up it always flowed right out of her nose. It was horrible. So this gave her a major aversion to having liquids in her mouth.

Luckily she is doing really good with eating now. So our goal is to get her to a point where she does not need her G-tube at all. Last weekend I think she was trying to make a point by pulling it out 3 times! Not cool! Had to involve 2 other nurse friends in the process, because she was a wiggle worm, fighting us when we would try to put it back in! Twice we were able to put it back in, we finally ended up having to make a trip to Loma Linda's ER to have them just put a new one in. I think she's trying to tell us she's done with it!