The Adame Family
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Followers
Favorite Blogs
Good Books
- Footprints of Hope: VCFS (Velo-Cardio-Facial Syndrome)
- In a Heartbeat
- It's My Heart
- Missing Genetic Pieces: Strategies for Living with VCFS
- Practical Handbook for Educating Children with Velo-Cardio-Facial Syndrome and other Developmental Disabilities
- Schuyler's Monster
- The Unraveling Thread
- Therapy Techniques for Cleft Palate Speech & Related Disorders
Our Angelina
Angelina was born March 1, 2007. When she was 2 days old after almost losing her, we learned she had 3 heart defects: An Interrupted Aortic Arch, a VSD and Critical Aortic Valve Stenosis. A week and a half later it was confirmed she had Velo-Cardio-Facial Syndrome (also know as DiGeorge Syndrome and other names). At 2 weeks of age she had her first of 3 heart surgeries: Norwood Stage 1, when she was six months old she had her second: the Glenn Procedure. On December 30, 2008, she had her 3rd and hopefully her last heart sugery, the Fontan. Her recovery has been amazing! Angelina is a spunky, cheerful little girl!
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Auntie Sa-sa
Thank you for starting our first Angel Baby blog!
Babies So Special
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The Adame Family
1 comments:
Nice pictures, from a children author
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